Mission: There are over 55 million people who suffer from about 7000 rare disease in the US and Europe alone. Collectively they form one of the largest social burdens on society, because it takes over 2.5 years for patients to obtain a proper diagnosis. Once diagnosed, only 2% of the diseases have a treatment, leaving the majority of patients to suffer and die. Isolation, lack of funding and limited information plague patients, treating physicians, researchers and companies. CheckOrphan’s mission is to provide timely news and information about rare diseases to empower patients and to better network and inform researchers, physicians, patient organizations and companies so they can collaboratively and more efficiently provide cures for rare diseases. CheckOrphan also initiates projects that help overcome existing hurdles in the rare disease arena.
Needs:
"With the following projects, we are turning to you for your talents, experience and skills to bring these projects to life and provide a better future for the millions who suffer from a rare disease. We will be happy to give you as much credit as you would like for your creative efforts!
Marketing Material (Graphic Design / Branding / Copywrite)
CheckOrphan needs an individual or team, who would develop flyers/brochures that advertise our free features and different sponsorship models. We have basic flyers, but they were not done by advertising professionals. It would give you the opportunity to create a brand identity for CheckOrphan and help CheckOrphan become a sustainable non-profit.
CheckOrphan.org (Web Design / Graphic)
The CheckOrphan website was done for free, however, the graphic and web design need to be enhanced to improve the userability of the website. CheckOrphan has mapped out a strategic plan that we would like to implement graphically to help drive users to selected content, especially the sponsorship platform. The goal is to work with you to improve our strategy and then to help you implement it to improve the user's experience,
CheckOrphan.org (Web Development / Web Design / Copyright)
CheckOrphan will be offering 4 new features to help overcome hurdles that the rare disease community face. These 4 projects will also help ensure that CheckOrphan becomes a sustainable non-profit. The first project is the Global Rare Disease Journalism program, where students around the world will be able to report on rare disease research at their respective university. Most researchers in this area are isolated and underfunded so this project will be key for improving the amount of funding and support for rare disease research. Another key project is a Global Rare Disease Registry. This project is key to helping cures for rare diseases reach the market place faster. The third are Education Packages, which will be a reproducible template that will allow us to better educate users about specific rare diseases. The fourth is an improved Sponsorship Platform that will encourage users to sponsor and make it a more user-friendly process. All will need a new tab in the top navigation with subpages that educate users and perform tasks such as: registering, sign in, integrating iframes.
Video
CheckOrphan would strongly benefit from two videos with the following aims:
1. A video that explains how patients, patient organizations, researchers and physicians and companies can benefit from CheckOrphan and positions CheckOrphan as a key resource for the rare disease community
2. A second video that spotlights CheckOrphan's resources and the benefits of its sponsorship offers and how to sponsor."
Please email us if you're interested in any of these creatvie volunteer opportunities
